Resources in Alphabetical Order
The following is a list of all of the resources from the RESCUE fact sheets. Resources are listed in alphabetical order. If preferred, view these resources arranged by category.
A | B | C | D | E | F | G | H | I | J | K | L | M
N | O | P | Q | R | S | T | U | V | W | X | Y | Z
AARP (American Association of Retired Persons)
AARP has helpful information for working and long-distance caregivers.
AARP also has helpful health tools* such as a pill identifier, a drug interaction checker and more.
They also offer driver safety classes both in the classroom and on-line. Find a class in your area.*
AbleData is a Web site that provides information about assistive technology products*.
About.com has helpful information on how stroke can affect your sexuality*.
Adaptive Information Resource Center
The Adaptive Information Resource Center provides information on adaptive sports and recreation options for people with disabilities. You can search for programs by state, find resources on traveling, and look for specific sports programs.
Administration on Aging
The Administration on Aging connects you to federal, national and local programs.
These programs may help pay for some expenses. Learn more about these programs.*
Agency for Healthcare Research and Quality (AHRQ)
The Agency for Healthcare Research and Quality has easy to understand advice columns to help navigate the healthcare system. Click on “Consumers and Patients” for information on choosing quality care*, getting safer care* and staying healthy*.
Also read about 20 Tips to Help Prevent Medical Errors*.
The Alzheimer's Association has practical tips
to help with memory problems. For example, they suggest labeling
drawers or cabinets with words or pictures that describe their
AlzOnline provides information on safety and injury prevention,
including Hurricane Preparedness for Caregivers.
American Association of Daily Money Managers
The American Association of Daily Money Managers is a membership organization that provides daily money management services to their clients. Find a DMM in your area.*
American Bar Association
Your state’s Bar Association may have basic living wills, trusts and power of attorney forms you can download. Find your state’s Bar Association.*
The American Bar Association – Commission on Law and Aging has legal tools* for making sure your wishes are carried out.
American Geriatrics Society Foundation for Health in Aging
The American Geriatrics Society (AGS) has a guide called “Eldercare at Home.*”
It is a step-by-step guide to caring for an older person at home. This guide is available free of charge on their Web site.
The AGS Foundation for Health in Aging has a list of warning signs of unsafe driving*.
American Heart Association
The American Heart Association provides information and helpful tips on how to stop smoking*. Smoking increases your risk of another stroke, so quitting is important.
The American Heart Association has free Family Discussion Boards*. You can share ideas and questions.
American Medical Association
The American Medical Association has a Caregiver Self-Assessment Questionnaire*.
This tool allows caregivers to look at their own behavior and health risks.
Also available in Spanish.*
American Pain Foundation
The American Pain Foundation has a tool called the Pain Resource Locator* to provide you with information, support and resources to manage your pain.
American Speech-Language-Hearing Association
The American Speech-Language-Hearing Association has information on communication problems after stroke. You can also search for licensed speech-language pathologists (including bilingual therapists) in your area*.
American Stroke Association
The American Stroke Association provides information on many aspects of stroke. In their “About Stroke*” section, they have more information on the warning signs of stroke and ways to lower your risks. Their “Life After Stroke” section has information for family caregivers on life after stroke. It includes information on support groups, resources and products.
The American Stroke Association has information about stroke-related physical problems.
The American Stroke Association has fact sheets to help with caring for someone with emotional and behavioral needs.
American Urological Association Foundation
The American Urological Association Foundation has information about incontinence*.
Aphasia Hope Foundation
The Aphasia Hope Foundation has information for stroke survivors and caregivers.
ARCH National Respite Network
ARCH National Respite Network has a database on respite care services available in your area*.
The Blue Pages has a directory of various state and local services, including links to local hospitals and medical facilities.
Care.com is an on-line resource to help families find care or caregivers find jobs. They also have helpful articles and resources for caregivers. Read about Caring for Seniors with Mobility Problems: Advice for Families and Caregivers*.
The Caregiver Library has several fact sheets on many topics dealing with stroke. Read more information about emotional issues after stroke*, managing medicines and pain*, and financial issues*.
Caregiverproducts.com is an on-line healthcare products store.
Caring.com has helpful tips on how to deal with difficult behaviors*, including using distractions and soothing techniques.
Caring.com has information on advance health care directives*. It includes a step-by-step guide on how to set up an advance directive. They also have expert advice on wills*. It explains what a will is and how to set up and update one.
Caring Connections is a program of the National Hospice and Palliative Care Organization. Download brochures on end of life care issues*.
Catholic Charities agencies serve people of all faiths. They provide a wide range of services such as housing, emergency services and health care. Find your local Catholic Charities Organization.*
Center for Assistive Technology & Environmental Access
The Center for Assistive Technology & Environmental Access provides information on assistive devices and aids.
ClinicalTrials.gov is a registry and results database
of federally and privately supported clinical trials conducted
in the United States and around the world. ClinicalTrials.gov
gives you information about a trial's purpose, who may participate,
locations, and phone numbers for more details. This information
should be used in conjunction with advice from health care professionals.
Commission on Accreditation of Rehabilitation
The Commission on Accreditation of Rehabilitation Facilities (CARF) accredits or gives a “seal of approval” to rehab facilities. Look for the CARF certificate of accreditation at the facilities you visit. Find an accredited facility near you.*
Connecting for Care
Connecting for Care provides resources and support for caregivers. Read their fact sheets on:
Department of Housing and Urban Development
The U.S. Department of Housing and Urban Development may help with funding for home modification projects. Find your local Housing and Urban Development office.*
Department of Veterans Affairs
The VA has some funding for home modification projects through its Home Loans program.
The VA Health Benefits Service Center provides information on VA health benefits and the types of care available to Veterans.
If you are new to the VA, the Federal Benefits for Veterans, Dependents and
Survivors booklet will help you get started. Also available in Spanish.
Some states have special programs for Veterans. Your local VA Medical Center may offer and pay for adult day healthcare programs and long-term housing. Talk to a social worker for more information about these benefits.
Disability Lawyers.com is an on-line nationwide disability lawyer directory.
Disabled American Veterans
Local service clubs, like the Disabled American Veterans (DAV), sometimes have transportation programs. They may also have volunteer drivers. Get more information on their transportation program.*
Eldercare Locator, Area Agency on Aging (AAA)
The Eldercare Locator helps you find your local Area Agency on Aging (AAA). Your local AAA can help you find community-based services like transportation, respite care, legal help and caregiver support services.
The Eldercare Locator also has a fact sheet on alternative transportation options for your loved one*.
Eldercare Online Network
The Eldercare Online Network has a resource guide on working with your pharmacist, taking medicines safely and storing medicines*.
Faith in Action
Faith in Action brings together people of many faiths to help their neighbors in need.
Volunteers shop, cook or just check in. Find a program in your area.*
Fall Prevention Center of Excellence
The Fall Prevention Center of Excellence has tips on ways to prevent falls both at home and in the community. Get more information on fall prevention.*
Family and Medical Leave Act (FMLA)
The Family and Medical Leave Act (FMLA) requires some employers to allow up to
12 weeks of unpaid leave. Some states have laws that expand leave.
Family Caregiver Alliance
The Family Caregiver Alliance provides information, education and services for caregivers. Read about the following topics below.
The Family Caregiver Alliance also has a fact sheet for caregivers on how to deal with trouble behavior*. Although it addresses dementia, the helpful tips can be applied to caring for stroke survivors as well.
View their full list of fact sheets.* Some information also available in Spanish.
Familydoctor.org has information on ways to deal with stress*. Some information also available in Spanish.
Federal Trade Commission
Report false or misleading health information to the Federal Trade Commission. Information also available in Spanish.
Health.gov is a portal to other government health sites. It also has a list of the most recent toll-free numbers for various health organizations.
Healthfinder has information on finding prescription drug assistance* through the Partnership for Prescription Assistance.
Healthfinder also has helpful tools such as a health encyclopedia and quick guides to healthy living. Information also available in Spanish.
Heart & Stroke Tayside (United Kingdom)
Heart & Stroke Tayside has helpful information for stroke survivors and caregivers. Read about the following topics:
Note: This Web site offers helpful information for caregivers, but some references may not apply to caregivers in the United States.
Home Safety Council
The Home Safety Council is dedicated to preventing
home injuries. Visit the resource center to download
free brochures and booklets on topics ranging from
disaster preparedness to home fire safety.
Hospice Foundation of America
Hospice Foundation of America has information on how to get hospice care. It describes available resources for end of life care needs.
Internet Stroke Center
The Internet Stroke Center has detailed information on stroke, from diagnosis through treatment and rehabilitation. Read about the following:
Lehigh Valley Hospital and Health Network
Lehigh Valley Hospital and Health Network has an article on Getting Fitted for a Cane or Walker*. It provides information on fitting yourself for a cane or walker.
Live Strong is an online service of the Lance Armstrong Foundation. The foundation is devoted to cancer patients and survivors. It offers good finance organizing forms anyone can use.
The Mayo Clinic has information for women on how to strengthen the pelvic floor muscles*. The exercises to strengthen these muscles are called Kegel exercises.
Meals-on-Wheels Association of America
See if your area has a Meals-on-Wheels service* that delivers food to the home. Enter the city and state you live in. The Web site will show if local agencies offer meal programs in your area.
Medicaid is a program that provides health coverage for lower income and disabled people. Benefits will vary by state. Benefits may include assistive devices, such as wheelchairs and scooters. Certain medical criteria must be met.
Medicare is a program that provides health coverage for people age 65 or older.
The Centers for Medicare and Medicaid Services gives comparisons of nursing homes in your area*. On that same page, you can also download a tip sheet on what to look for when visiting a nursing home. View their Nursing Home Checklist.*
There is also a comparison of home health agencies in your area*.
MedlinePlus provides trusted health information on many topics. It will direct you to information on many health topics including erectile dysfunction, mobility aids and catheters.
MedlinePlus has guides on finding reliable health information on the internet. Information also available in Spanish.
Med Supply Guide
The Med Supply Guide has more information about wheelchairs*.
MOVE! Weight Management Program
The Move! Weight Management Program is a VA diet and exercise program to help
Veterans improve their health. To make the program more tailored to your needs, take the MOVE! 23 questionnaire.
There are also handouts on nutrition, exercise and emotional health. Information is also available in Spanish.
My HealtheVet has information on VA services, strokes and caregiving. Visit their Caregiver Assistance Center. Other My HealtheVet Healthy Living Centers have guides on eating well, exercising and taking medicine safely. It has tools to help track your progress and additional resources.
My HealtheVet has information on aging and sleep. You can find a test to measure your insomnia severity index. There is a sample diary to track your daily sleep patterns.
My HealtheVet also has a screening test you can take for symptoms of depression.
Mymoney.gov is the US government’s financial education site. It provides important information on various financial topics.
MyPlate.gov provides information on the food groups and provides
dietary recommendations. You can also find healthy eating tips
and use the interactive tools to create a personalized plan.
National Academy of Elder Law Attorneys
The National Academy of Elder Law Attorneys provides education and support on financial issues. They have brochures on Medicare and planning for health care decision making. See a list of their brochures.*
National Adult Day Services Association
The National Adult Day Services Association can help you find services in your area.
They have an informative guide on respite services*.
National Association of Area Agencies on Aging
The National Association of Area Agencies on Aging is a national site that helps you find local services and ways to pay for care.
National Association of Professional Geriatric Care Managers (NAPGCM)
The National Association of Professional Geriatric Care Managers can help you find a certified care manager. Find a care manager near you.*
National Caregivers Library
The National Caregivers Library has helpful information for caregivers. Read about the following topics:
National Center for Assisted Living
The National Center for Assisted Living has information on assisted living facilities in your area*.
National Center on Senior Transportation
The National Center on Senior Transportation has many resources for finding transportation options for older adults (to help them be more independent).
National Council on Aging, BenefitsCheckUp
The National Council on Aging, BenefitsCheckUp has an online questionnaire to check programs your loved one is eligible for*.
National Council on Aging: Center for Healthy Aging
The Center for Healthy Aging has several fact sheets and tools on managing medicines. View their list of fact sheets.*
National Family Caregivers Association
The National Family Caregivers Association provides information on caregiver resources. Learn about choosing nursing homes and how to find home healthcare. Find caregiver support groups and services.
National Heart, Lung, and Blood Institute
Dietary Approaches to Stop Hypertension (DASH) is a diet used by the National Heart, Lung, and Blood Institute to help prevent or reduce high blood pressure. Read the following guide: “Your Guide to Lowering Your Blood Pressure with Dash.*”
National Hospice and Palliative Care Organization (NHPCO)
The National Hospice and Palliative Care Organization has information to help with end of life issues*.
National Institute on Aging (NIA)
The National Institute on Aging has a publication for caregivers called “So Far Away: Twenty Questions for Long-Distance Caregivers.*” It offers answers to 20 commonly asked questions long-distance caregivers have.
The National Institute on Aging has guides on obtaining good healthcare and information. Information also available in Spanish.
National Institute on Deafness and Other Communication Disorders (NIDCD)
The National Institute on Deafness and Other Communication Disorders (NIDCD) has information on various health conditions and treatments. It also has tips for caring for survivors with different communication problems.
National Institutes of Health (NIH)
The National Institutes of Health has a caregiver guide to dental care*.
National Resource Center on Supportive Housing and Home Modification
The National Resource Center on Supportive Housing and Home Modification has a large list of companies with products to make daily living easier*.
National Resource Directory
The National Resource Directory provides information on and access to resources for Veterans and their families. The directory includes a full range of medical and nonmedical services and resources.
National Sleep Foundation
The National Sleep Foundation has tools to assess satisfaction with sleep. You can find a tool to measure the amount of caffeine in food and drinks. You can find a diary to keep track of sleepiness. There is a tool to determine your loved one’s snore score. You can also find information about sleep myths.
National Stroke Association
The National Stroke Association has detailed information on stroke, from prevention to recovery. Read about the following stroke topics:
The National Stroke Association has a guide called “HOPE: The Stroke Recovery Guide.*” Chapter four is on movement and exercise. This chapter gives an exercise program for stroke survivors who are affected either mildly or moderately by stroke.
The National Stroke Association has a lot of information about stroke support groups*, including how to start your own stroke support group. They a link to a directory called the "Stroke Group Registry" to help you find a stroke support group near you. They also have information on starting your own support group.
The NeighborWorks Network and other non-profit and volunteer groups may pay for some home changes. Find a NeighborWorks organization near you.*
NIH Senior Health
NIH Senior Health has information on stroke and eating well. See their list of stroke topics.*
NIH Senior Health has quizzes to increase your knowledge of sleep and aging. You can learn about changes in sleep patterns as people get older. You can find treatments for sleep disorders like sleep apnea and restless leg syndrome.
NYU Langone Medical Center/NYU School of Medicine, Department of Psychiatry
NYU Langone Medical Center/NYU School of Medicine, Department of Psychiatry has information on depression and an on-line depression screening test*.
Rebuilding Together and other non-profit and volunteer groups may pay for some home changes. Find your local group.*
Release Your Potential
Release Your Potential is an on-line community for people affected by spasticity. It provides information on spasticity along with various treatments and resources.
Sammons Preston is an on-line healthcare products store.
Senior Planning Services
The Senior Planning Services has more information about exercise*, including a fact sheet on exercises to do at home.
Social Security Administration
The Social Security Administration may help with funding. Find a Social Security Office near you.*
The Social Security Administration has information on Supplemental Security Income (SSI)*. SSI is income in addition to Social Security for low-income persons.
Strength for Caring
Strength for Caring has information for caregivers on caring for someone with physical needs. Read about:
Stroke Association (United Kingdom)
The United Kingdom Stroke Association has an A-Z list of fact sheets on stroke-related topics*. This includes information on hemiplegia, balance problems and psychological effects of stroke.
The United Kingdom Stroke Association has tips on healthy eating and exercise*. They also have a guide called “Stroke: A Carer’s Guide*.” It deals with how caring for someone affects the caregiver and family.
Note: This Web site offers helpful information for caregivers, but some references may not apply to caregivers in the United States.
The Stroke Network has links to support groups, chat rooms and bulletin boards.
Stroke QUERI is a Department of Veterans Affairs site that provides Veterans and their families with information on stroke.
The United Way links you to a variety of community resources. Find your local agency.
Download the US Government preparedness kit checklist of what supplies you should have on-hand in case of an emergency.
VA (see Department of Veterans Affairs)
VA Caregiver Support
National VA Caregiver Support Line: 1-855-260-3274
VA knows your focus as a Family Caregiver is taking
care of the Veteran you love. It can be an incredibly demanding
job, and we want you to know you don't have to do it alone. Learn
more about the support and services VA offers Family Caregivers.
*Link Disclaimer: Links to information
and Web sites outside of the Department of Veterans Affairs do not
indicate an endorsement of products or services offered by the sites.
In addition, these sites may have privacy and security policies
that are inconsistent with those of VA.
a free version of Adobe Reader* to view PDF files.
These materials were created for the project:
Web-Based Informational Materials for Caregivers of Veterans Post-Stroke
Project Number SDP 06-327 funded by VA HSR&D Quality Enhancement Research Initiative (QUERI); Supported by the
Visit the Stroke QUERI Website